Google
Trusted Resources: News & Events
Latest announcements and gatherings
Sickle Cell Awareness Month- NICHQ
NICHQ joins the Sickle Cell Disease Association of America (SCDAA) to help focus attention on the need for research and treatment of sickle cell disease during September. The theme for 2022 is Sickle Cell Matters.
Sickle cell disease (SCD), an inherited blood disorder that is more prevalent in people of African and Latinx/Hispanic descent, affects approximately 100,000 Americans, and sickle cell trait affects an estimated 2 million individuals. People living with SCD experience acute pain crises, dangerous infections, and other serious health problems that can damage every organ in the body, requiring providers who are knowledgeable and understanding.
Join our efforts to bring attention to the unique experiences and challenges of people living with SCD and the variety of resources available to health care professionals! Use the hashtags #SickleCellAwarenessMonth and #SickleCellMatters2022 to help raise awareness on social media about sickle cell disease and sickle cell trait, and check out these helpful tools and resources.
+myBinderRelated Content
-
Patient Reported Outcomes and Adherence to Hydroxyurea in Adolescents and Young Adults With Sickle Cell Disease: A F...Background: SCD-related complications r...
-
2017 April 29 SiNERGe Webinar on Bone Marrow Transplantshttps://www.youtube.com/watch?v=HudIvtS_...
-
Blood Transfusions for Sickle Cell DiseaseDuring a blood transfusion, a person (th...
-
GBT launches ACCEL grants program to improve access to care for people with Sickle cell diseaseGlobal Blood Therapeutics, Inc. (GBT) to...
-
Osheiza Abdulmalik, PhDDr. Abdulmalik’s research interests br...
-
Erica Esrick, MDDr. Erica Esrick is a pediatric hematolo...
-
World Sickle Cell Awareness DaySince 2008, World Sickle Cell Awareness ...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Powered by
SomeBodyToTalkTo connects people affected by rare diseases with trusted resources, supportive communities, and opportunities to share their experiences.